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Number of entries: 72 Number of pages: 8
« First 1 2 3 4 5 6 7 Next › Last »
Number of entries: 72 Number of pages: 8
« First 1 2 3 4 5 6 7 Next › Last »
Submitted by
Name: Jean Buchan
From: Penicuik Midlothian Scotland
E-mail: rossjeanamanda.buchan@btinternet.com
Name: Jean Buchan
From: Penicuik Midlothian Scotland
E-mail: rossjeanamanda.buchan@btinternet.com
Comments:
Just been at The Scottish Williams Syndrome Convention in the lovely Stirling University. We thoroughly enjoyed our workshops the forum and the chat. Lunch was excellent. Pity John Nelson and some others couldn't make it because of the Volcano. ( how ridiculous does that sound in Scotland), but the coordinators Mairi, Nicky and Allan did a wonderful job. Thank you guys we really appreciate all you do for the region. I hope John knows how important you are.
Jean Ross and Amanda Buchan.x
Just been at The Scottish Williams Syndrome Convention in the lovely Stirling University. We thoroughly enjoyed our workshops the forum and the chat. Lunch was excellent. Pity John Nelson and some others couldn't make it because of the Volcano. ( how ridiculous does that sound in Scotland), but the coordinators Mairi, Nicky and Allan did a wonderful job. Thank you guys we really appreciate all you do for the region. I hope John knows how important you are.
Jean Ross and Amanda Buchan.x
Added: April 18, 2010
Comments:
Hi I have a son with WS he is lovely sweet child.He is going to start main stream primary school in september I would love to meet with parents from London and have a chat about WS.Feel free if u want to email me.
Hi I have a son with WS he is lovely sweet child.He is going to start main stream primary school in september I would love to meet with parents from London and have a chat about WS.Feel free if u want to email me.
Added: April 12, 2010
Comments:
Hi everyone. I have a beautiful daughter aged 6 1/2 who was diagnosed with ws just over a year ago. I'm told she's only mildly affected and so far does not have any of the major health difficulties such as heart problems etc. She's an only child and I worry what will happen to her when I'm no longer around. Will she ever marry and have kids of her own? Would love to hear from someone who can give me hope for her future.
Admin reply: Web Dev testing
Hi everyone. I have a beautiful daughter aged 6 1/2 who was diagnosed with ws just over a year ago. I'm told she's only mildly affected and so far does not have any of the major health difficulties such as heart problems etc. She's an only child and I worry what will happen to her when I'm no longer around. Will she ever marry and have kids of her own? Would love to hear from someone who can give me hope for her future.
Admin reply: Web Dev testing
Added: March 19, 2010
Comments:
Hello everyone, I am the parent of WS boy aged 10.
Just wondering if anyone has had success obtaining higher rate mobility allowance and or blue badge for their WS child? Would be happy to hear from anyone with advice/tips many thanks Shaorn Nulty
Hello everyone, I am the parent of WS boy aged 10.
Just wondering if anyone has had success obtaining higher rate mobility allowance and or blue badge for their WS child? Would be happy to hear from anyone with advice/tips many thanks Shaorn Nulty
Added: March 9, 2010
Comments:
hi our son Jack started special school in sept with hardly any language and since starting there his language has improved lots. he can put things together now like GIVE ME YOUR HAND being one. He really is happy there. Its his behavour we struggle with. He gets himself so confused and talks about randome things. His obsessions are cbeebies programmes and sweet foods. He has a 21 month old brother who he gets on with but finds it hard to play nicely and share toys with, Their relationship is still forming.Jack has recently become a brother again to his baby sister Daisy- Mae and he has suprised me as he lashed out loads at Charlie wen he was born and he is so calm and have hardly experienced any unwanted behavour towards his sister. Im proud of him for that.
Any1 wanting to email us feel free to xxx
hi our son Jack started special school in sept with hardly any language and since starting there his language has improved lots. he can put things together now like GIVE ME YOUR HAND being one. He really is happy there. Its his behavour we struggle with. He gets himself so confused and talks about randome things. His obsessions are cbeebies programmes and sweet foods. He has a 21 month old brother who he gets on with but finds it hard to play nicely and share toys with, Their relationship is still forming.Jack has recently become a brother again to his baby sister Daisy- Mae and he has suprised me as he lashed out loads at Charlie wen he was born and he is so calm and have hardly experienced any unwanted behavour towards his sister. Im proud of him for that.
Any1 wanting to email us feel free to xxx
Added: January 18, 2010
Comments:
Hi my daughter is 9 years old and was diagnosed with WS 7 1/2 years ago, she's a lovely little girl full of life. She is really struggling in school and i don't know how to help her progress. Would be great to chat to other parents who have a child with WS.
Hi my daughter is 9 years old and was diagnosed with WS 7 1/2 years ago, she's a lovely little girl full of life. She is really struggling in school and i don't know how to help her progress. Would be great to chat to other parents who have a child with WS.
Added: January 13, 2010
Comments:
Hi all I contacted here a few years ago now and was in contact with John Nelson over my daughter olivia who was four at the time and in which they suspected williams sindrome ,john asked me to send photos of olivia and he thought she did look like williams Im still no further forward and the genetics will still not rule this out ,they have also found a change on chromosome 15 and dont know what this is ,she still continues to have all the problems with williams and is having surgery on her teeth as they are not developing and is having issues with them at the moment is anybody else in this situation or any advise would be great .
Im unsure as to how this can not be ruled out
Hi all I contacted here a few years ago now and was in contact with John Nelson over my daughter olivia who was four at the time and in which they suspected williams sindrome ,john asked me to send photos of olivia and he thought she did look like williams Im still no further forward and the genetics will still not rule this out ,they have also found a change on chromosome 15 and dont know what this is ,she still continues to have all the problems with williams and is having surgery on her teeth as they are not developing and is having issues with them at the moment is anybody else in this situation or any advise would be great .
Im unsure as to how this can not be ruled out
Added: January 4, 2010
Comments:
My eighteen month old daughter Scarlet has just been diagnosed with WS.She is always smilling,happy and loving.She has trouble eating and has very irratic sleep patterns amongst other things.
I was just wanting to know if other parents and carers would like to contact me and share experiences and ideas.Feel free to email me.X
My eighteen month old daughter Scarlet has just been diagnosed with WS.She is always smilling,happy and loving.She has trouble eating and has very irratic sleep patterns amongst other things.
I was just wanting to know if other parents and carers would like to contact me and share experiences and ideas.Feel free to email me.X
Added: December 15, 2009
Comments:
we have a wonderful son who is now 10 years old. he has scoliosis and is under Great Ormond Street and it is planned for him to have growth rods fitted in about feb/march next year. we are obviously concerned about this and wonder if any other ws children have had to have the same surgery.
we have a wonderful son who is now 10 years old. he has scoliosis and is under Great Ormond Street and it is planned for him to have growth rods fitted in about feb/march next year. we are obviously concerned about this and wonder if any other ws children have had to have the same surgery.
Added: December 10, 2009
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Name: paul jones
From: Bradford
E-mail: crazypom1@yahoo.co.uk
just returned from the Scottish convention, it was our first as our daughter Bethan was only diagnosed last year aged 5. we found the talks a help but most of all swapping info with other parents, would attend again thanks.
just a shame the Icelandic volcano stopped other professionals from attending.