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Williams Syndrome Guestbook
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Number of entries: 72 Number of pages: 8
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Number of entries: 72 Number of pages: 8
« First ‹ Prev 1 2 3 4 5 6 7 8 Next › Last »
Comments:
I am 30 year old male.i was born with williams syndrome.3 years ago i had open heart surgery it was tuff i made it through it fine thank God.Some time its hard for me because people try to run over me.I guess im to nice of guy un see.any Body would like to talk as friends give me a call ok 318-491-0073
I am 30 year old male.i was born with williams syndrome.3 years ago i had open heart surgery it was tuff i made it through it fine thank God.Some time its hard for me because people try to run over me.I guess im to nice of guy un see.any Body would like to talk as friends give me a call ok 318-491-0073
Added: July 7, 2009
Comments:
Hi my daughter is now 3years old and has recently started displaying some really bad temper tantrums (hitting herself in the head etc), everyone has just said its due to frustration and shes attenchion seeking but no one has gave me any advice on how to stop it. Has anyone else had these problems? Please email me
Hi my daughter is now 3years old and has recently started displaying some really bad temper tantrums (hitting herself in the head etc), everyone has just said its due to frustration and shes attenchion seeking but no one has gave me any advice on how to stop it. Has anyone else had these problems? Please email me
Added: June 25, 2009
Comments:
Hello, my 7month old daughter has all the facial significations of williams and has to have a heart scan soon for a possible hole in her heart, she has only slept throught the night a handful of times since birth and she was very colicy!she has a very wide nasal bridge and puffy eyes a small chin infact her face is identical to most of the pictures i have seen and the doctor says she has epicantal folds. i want to get her tested for williams asap. i was interested to see if other people with children with williams can tell me if my daughter may have this just by my description? thankyou!
Hello, my 7month old daughter has all the facial significations of williams and has to have a heart scan soon for a possible hole in her heart, she has only slept throught the night a handful of times since birth and she was very colicy!she has a very wide nasal bridge and puffy eyes a small chin infact her face is identical to most of the pictures i have seen and the doctor says she has epicantal folds. i want to get her tested for williams asap. i was interested to see if other people with children with williams can tell me if my daughter may have this just by my description? thankyou!
Added: April 27, 2009
Comments:
Hi, have recently found out our 19months old son has WS and was looking for advice or someone to chat to about it. Many thanks
Hi, have recently found out our 19months old son has WS and was looking for advice or someone to chat to about it. Many thanks
Added: April 24, 2009
Comments:
hi there my little gril ruby is 8 months and she has williams sydrome she has open heart surg 2 times and has bad feeding problems so bad she has a ng tube because she wont eat or drink herself she on sleeping med as she never sleeps she has low musle tone and dev delays .she also has refulx is there anybody whos havein same problems .
hi there my little gril ruby is 8 months and she has williams sydrome she has open heart surg 2 times and has bad feeding problems so bad she has a ng tube because she wont eat or drink herself she on sleeping med as she never sleeps she has low musle tone and dev delays .she also has refulx is there anybody whos havein same problems .
Added: April 15, 2009
Comments:
hello my cousins new born has just been diagnosed with ws, she is really up set as she has not really been told much about it, i will be telling her to go to this web site as i think every thing she needs to no will be on this site, you all do a brill job and i thiank you for the help and support you offer to people with and who no people with children with ws.
hello my cousins new born has just been diagnosed with ws, she is really up set as she has not really been told much about it, i will be telling her to go to this web site as i think every thing she needs to no will be on this site, you all do a brill job and i thiank you for the help and support you offer to people with and who no people with children with ws.
Added: March 28, 2009
Comments:
Hello,My wife and I will be foster parents to a child with Williams Syndrone. We just found out about it today. We know nothing about it or what we need to so we will know how to help him cope with the world. He has been in an orphanage all of his life, he is 9 years old and looks about 6 years old, small hands and feet, slanted eyes, does not like music but love to work with lego's and is loving, rocks himself to sleep at night, he rocks so hard that he is all over the bed and eventually goes to sleep is there help for him and for us to learn about this illness he has.
Sincerely your Ed and Vali Kirkner
Hello,My wife and I will be foster parents to a child with Williams Syndrone. We just found out about it today. We know nothing about it or what we need to so we will know how to help him cope with the world. He has been in an orphanage all of his life, he is 9 years old and looks about 6 years old, small hands and feet, slanted eyes, does not like music but love to work with lego's and is loving, rocks himself to sleep at night, he rocks so hard that he is all over the bed and eventually goes to sleep is there help for him and for us to learn about this illness he has.
Sincerely your Ed and Vali Kirkner
Added: March 19, 2009
Comments:
Hey every one my name is Dana I have willis sindrum I gust trend 20 on the 5th of febuwarey I live in Ohio I have 2sisters and one brother I have 2cats I gust graduwted from clay hi school I have a triend her name is Sam I love her a lot I have a mom and dad but they are not mared no more school was not ezey on me the kids at school wold call me names and stuff it was not good at all
Admin reply: Hi Caroline
We don't normally answer messages left in our Guestbook but I cannot trace you on our database and feel you and your daughter would really benefit from joining our Foundation. I tried to reply to your email address but it defaulted. Please email me direct on john.nelson-wsfoundation@btinternet.com or phone me on my office line 01732 365152.
Hey every one my name is Dana I have willis sindrum I gust trend 20 on the 5th of febuwarey I live in Ohio I have 2sisters and one brother I have 2cats I gust graduwted from clay hi school I have a triend her name is Sam I love her a lot I have a mom and dad but they are not mared no more school was not ezey on me the kids at school wold call me names and stuff it was not good at all
Admin reply: Hi Caroline
We don't normally answer messages left in our Guestbook but I cannot trace you on our database and feel you and your daughter would really benefit from joining our Foundation. I tried to reply to your email address but it defaulted. Please email me direct on john.nelson-wsfoundation@btinternet.com or phone me on my office line 01732 365152.
Added: February 25, 2009
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Name: gEORGINE THOMPSON
From: CAMBRIDGE, ONTARIO CANADA
E-mail: georgiet@melmart.com
I have a daughter,Kelly, she is 33 years old now and she has ws. She is very outgoing, talks to everyone. She loves music in any form. He is for the most part ver healthy, verbally she has limited vocabulary. I am originally from Glasgow, however, kelly was born in Canada