Our ‘Face of WS’ this week is Tommy! ⁠ .⁠ ‘This is Tommy, he is 11 years old and he loves his hot tub!❤ He has coped really well with lockdown. After a tough first week struggling to understand why he wasn’t going to school, he now does daily light exercises, goes in the hot tub (rain or shine) and continues to watch his favourite TV programmes - Family Fortunes, Storage Wars and The Cube.”⁠ .⁠ #shareyourheart #williamssyndrome #wsf #faceoftheweek⁠

Our ‘Face of WS’ this week is Freya! ⁠ .⁠ ‘This is Freya who is 11. She is a social butterfly and loves chatting! She has lots of interests particularly her dogs, Willow and Bee, and her cats Bear and Elsa. She is also a big horse-riding fan and rides with the RDA. She absolutely loves school, has made a good friend and really misses going.” ⁠ .⁠ #shareyourheart #williamssyndrome #wsf #faceoftheweek⁠

For our ‘Face of WS’ this week we are remembering a very special person who would have been turning 40 on Sunday. ⁠ Nikkie, who sadly passed away last year, was an outstanding Ambassador for the WSF who went to great lengths to raise awareness of WS. ⁠ ⁠ Nikkie was a member of the Mencap Treat Me Well Campaign Steering Group. She attended a number of events at the Houses of Parliament, including two of the All-Party Parliamentary Group on Learning Disability. She spoke out at the meetings correcting some of the Parliamentary Members when they got things wrong and made sure they listened to what the group wanted them to hear. The TMW Group facilitators believe that her voice at those meetings was instrumental in helping to get focused support for training for medical professionals working with LD and Autistic people, which came through the APPG meetings and following recommendations.⁠ ⁠ Nikkie touched many hearts and is missed by the WSF community. ♥️⁠

Lots of Birthday wishes to Tia who turns 12 today! 🎂⁠ .⁠ This is Tia, who is celebrating her 12th Birthday today! Tia is in the extremely vulnerable category due to her medical needs and has been sheilding since 23rd March!! She has been amazing during lockdown and always has a smile but she is desperate to give her family hugs!! Xx⁠ .⁠ #birthday #birthdaygirl #smile #shareyourheart #williamssyndrome

Zoom Session - Adults with WS siblings. ⁠ On Thursday 30th July at 8pm we will be joined by adult members with WS siblings for an informal chat about the positives, strengths and challenges of having a sibling with WS. Please email enquiries@williams-syndrome.org.uk if you would like to join in or find out more. ⁠ . ⁠ #sibs #wssibs #williamssyndrome

BIG NEWS this week is that we will be joined by the fantastic @FfrindiauGigiau for a special EXTENDED SINGALONG with @electricumbrella this Wednesday at 4-5.30pm. ⁠ There are just 2 weeks to go before Electric Umbrella take a break for August so don’t miss out! ⁠ Watch on Facebook live or even better ZOOM with us by signing up at www.electricumbrella.co.uk.⁠ .⁠ #electricumbrella #singalong #williamssyndromefoundation #williamssyndrome #williamswednesday ⁠

Our ‘Face of WS’ this week is Harry!🦏⁠ . ⁠ ‘This is Harry, he's 17 and he LOVES rhinos. Harry has a caring nature and is very friendly. Before lockdown, Harry started participating in the local park run where he made many new friends and he also beat his personal best for five consecutive weeks!’⁠ Go Harry! ⁠ .⁠ #shareyourheart #williamssyndrome #wsf #faceoftheweek⁠

Please join us in wishing Grace a big HAPPY 21ST BIRTHDAY today!! We hope you have lots of fun and enjoy your special day 🎂🎈⁠

Please join us in wishing Lylia a big HAPPY BIRTHDAY who is 11 today! ⁠ . ⁠ "Lylia will be turning 11 on the 15th July. We bought her a bouncy castle to have a bouncing birthday! Birthdays are her favourite day - singing, cakes and blowing the candles!"⁠ .⁠ #happybirthday #birthday #birthdaygirl #williamssyndrome #shareyourheart

If you need something to brighten up this grey day, join us on Zoom at 4.30pm, together with our friends from Electric Umbrella for singing, songs and lots of smiles. Head over to electricumbrella.co.uk and set up your account! ☂️💛