One in 18,000 people in the UK have Williams Syndrome.
Williams Syndrome is a micro-deletion of genetic material from a specific region of chromosome 7.
Only one in 30 GPs will ever see a patient with Williams Syndrome.
How we can help
The WSF is on hand to offer help and support to families, carers and people with WS.
The Foundation arranges and subsidises group respite breaks for WS adults and families.
However you choose to fundraise, we are here to help and support you every step of the way.
Watch nowMathew Baynton sets out to raise awareness of Williams Syndrome.
Latest News
We would like to thank all our members for continuing to support the WSF in 2025. Without your subscriptions, we simply would not be able to exist.
Paid membership subscription fees for 2025 are due on February 1st. Please email enquiries@williams-syndrome.org.uk if you have any questions
We are delighted to welcome British actors Mat Baynton and Clare Perkins to the team as Patrons for the WSF. Click here to find out more about Mat and Clare and their connection to the Foundation.
The biggest gathering of people with Williams Syndrome will be taking place in 2025 at Butlins in Skegness! There will be presentations from our prestigious PAP members, workshops, an award ceremony and a disco! Email enquiries@williams-syndrome.org.uk to apply.