The Association Between Motor Abilities, Cognitive Language & Social Skills in Early Childhood Development. Ages 3- 5 years
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mathMIND Study: Early Pathways to Independence in Numeracy for Children with Genetic Syndromes. Ages 4-9 years
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Motor Skill Learning, Physical Activity and Mental Health in Autism Spectrum Disorder, Down Syndrome, and Williams Syndrome. Ages 7 – 16 years
EmailShape Research Change Lives
The aim of this part of the study is to understand the priorities of the Williams Syndrome community and compare them to the current research landscape. We have conducted a review of the research funded and literature published in the last 10 years in the UK. We would now like to find out how these findings compare with the priorities of the Williams Syndrome community. We will bring together the responses from all participants and will report your research priorities to researchers, people who fund research, and people who make decisions about public services.
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The Wisdom (Development in Williams Syndrome) study
The Wisdom study started in 2018, when Prof Jo Van Herwegen was given access to the data gathered by the members of staff who worked with the late Professor Annette Karmiloff-Smith.
This data started in the 90s and spans about 30 years. In addition, over nearly 20 years Jo has collated extensive data from participants with WS in the UK across different research activities as well as the WSF clinic. We would like to extend this research study in order to gain a much greater understanding of our members over time so that we can evidence the needs and challenges and ultimately provide support and materials for those needs.
We are asking for all our members to join this study and complete the online survey below. We will then re-circulate the survey periodically so that we can capture the changes over time and really understand the WS life-time journey.
Special Educational Needs and Disability (SEND): Developing Quality Inclusive Practice
New Guidelines – Independence in Adulthood by Prof Emily Farran and Dr Ellen Ridley
