There are lots of charities providing resources and services for disabled people and people with additional needs. 

Education

• (IPSEA) Independent Provider of Special Education Advice – online legal advice and telephone services regarding unlawful education decisions.
• SOS!SEN – The Independent Helpline for Special Education Needs – We offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN)
• SEND Advocacy | Education Advocacy for SEN | Empowering Children
• Support to Parents and Young People – SEN Action
• Support SEND kids | Home

Funding for Families

• Families – Caudwell Children – funding towards assessments & therapies (for families with household income below £60k)
• Boparan – funding for mobility equipment and therapies
• Family Fund – funding for low income families in receipt of benefits
• Children Today – funding for specialist equipment

General

• Cerebra – Working with you and your amazing child – parent guide, toy library, sleep service.
• Disorder Guides – Unique – various useful guides for families living with a rare genetic condition  
• Contact: the charity for families with disabled children – providing a listening ear service, useful guides, workshops and webinars
• NSPCC | The UK children’s charity | NSPCC – advice to keep children save
• Learning Disability – Down syndrome – Williams syndrome | Mencap – information, easy reads, videos, and support lines for individuals and family members affected by learning disabilities
• Williams Syndrome – Sibs – Sibs a national charity to support siblings
• Charity | Trauma-Informed Psychotherapy | UK Based – Trauma support for people with LD

Health

• Easy read health information :: Hampshire and Isle of Wight NHS Foundation Trust – All you need to know about Annual Health Checks 
• Improving hospital interactions
• Welcome to Little Journey – an app to help reduce anxiety around hospital visits for children
• Cam RARE Patient Passport: Any rare condition, any age, anywhere – a hospital passport that folds into a lanyard card holder
• Global medical ID service with Emergency Alerts – a digital passport that can be accessed with your own personalised QR code
• For Child & Family – EnrichMyCare – upload all of your patient records and share easily with medical professionals. You can also download reports into a PDF to support your DLA/PIP application
• We’re Mind, the mental health charity | Mind – supporting mental health

Holidays

• Holidays guide FTNW.pdf – Unique (a charity covering all rare chromosome conditions) has a great guide on holiday companies and funding.
• Over The Wall Camp – UK Children’s Charity – a charity that holds family camp and sibling camp holidays (child with WS would need to be 8-17 for family camp, sibs need to be 8-17 for sibling camp)
• Travel insurance FTNW.pdf – Unique (a charity covering all rare chromosome conditions) has a great guide about travel insurance

Supported Living

• Supporting People with Learning Disabilities and Autism | Affinity Trust
• Options for supported living   | Disability charity Scope UK
• Supported living services | Mencap

This is not an exhaustive list. If you know of other national charities that support families like ours, please do share them with us by emailing media@williams-syndrome.org.uk