Most people have never heard of Williams Syndrome. We want to change that!

As Williams Syndrome is so rare, only 1 in 35 doctors will have met someone with WS. This means that almost every time a parent meets a new health professional, they have to explain Williams Syndrome and how it impacts their child. Parents face the same issue within education and social care.

By raising awareness of Williams Syndrome we can improve early diagnosis and intervention, encourage policy makers to increase access to services and fund research as well as reduce feelings of isolation and discrimination.

We can also help to create a more inclusive society and improve access to appropriate medical care.

People with WS generally need lifelong care and support and usually outlive their parents. Parents constantly worry about who will care for their children after they are gone, and whether they will understand Williams Syndrome.